2025 Meeting | Pediatricraredisease

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PRDS 2025 Agenda

08:30AM

Registration and Light Breakfast

09:00AM

Opening Remarks By Boston Children’s Leadership

09:20AM

Panel: The Children’s Rare Disease Collaborative – Perspectives from Experts

09:45AM

Keynote by Dr. Wendy Chung, Chief of Pediatrics

10:15AM

Coffee

10:30AM

Perspectives: Paired talks featuring patients, families and researchers discussing key priorities and benefits of research

11:30AM

Panel: Families and Advocacy Groups Advancing Rare Disease Research

12:00PM

Lunch and Poster Session:

Showcasing Excellence in Rare Disease Research*Featuring Paired Poster Presentations by Patients and Researchers*

01:30PM

Panel: From Boston to the World – Rare Disease Families Share Their Experiences

02:00PM

Perspectives: Paired talks featuring patients, families and researchers discussing key priorities and benefits of research

03:00PM

Coffee

03:30PM

Scaling Therapeutics: Addressing the Challenges

04:00PM

Closing Remarks

04:15PM

Poster Session and Networking Mixer

06:00PM

Session Ends

Thank You to Our 2025 Sponsors!

Silver Sponsors

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Bronze Sponsors

Gold Sponsor

Silver Sponsors

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Bronze Sponsors

Patient Advocacy Groups Represented in 2025

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