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Perspectives
Patients, families and researchers discuss key priorities and benefits of rare disease research from different perspectives
Rare Disease Research as a Legacy:
Impactingfuture patients and families
Dr. Janet Chou
Section Chief, Clinical Immunology;
Director Immunogenomics
Danielle Simoes
Patient Parent
Building Community:
Long-term Research
Dr. Siddharth Srivastava
Physician, Department of Neurology
Paul Terry
Patient
Co-Moderated by:
Lisa Rubino
Director, Office of Experience
Dr. Shira Rockowitz
Data Science Director
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