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Perspectives
Patients, families and researchers discuss key priorities and benefits of rare disease research from different perspectives
Making Research Accessible:
A look at language access and navigating care experiences
Dr. Matthew Sampson
Physician, Division of Nephrology
Esterlina MacInnes
Patient parent
Family Partnerships Coordinator for Latino families
Patient Center Research Design...
And outcomes reporting, too
Dr. Sarah Morton
Physician, Division of Newborn Medicine
Jillian and Brenda Allair
Patient & Parent
Co-Moderated by:
Katie Litterer
Program Manager,
Family Partnerships
Patient Parent
Dr. Courtney French
Genomics Manager,
CRDC Operations
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